The National Amyloidosis Centre has developed this website as a public service to provide patients and their family and friends with a comprehensive, accurate and up to date resource on all types of amyloidosis. We welcome your feedback.
Throughout this website, explanations of technical terms are provided. To see these explanations, hover over (or touch if you are viewing on a touch screen) the words with dashed underlining, for example: “amyloid“.
Much information about amyloidosis is available on the internet. Some of it is alarming and much of it can be confusing. There are many different types of amyloidosis. Each type has different causes, different symptoms and different treatments. In order to understand the disease you need to understand which type is present.
We suggest that first time visitors to this website start by reading the essentials section, then read the section about the type of amyloidosis that you or your relative has. The different types of amyloidosis include AL , AA , ATTR (which may be either hereditary or non-hereditary) and other, rarer hereditary types. All of these types of amyloidosis may be “systemic” which means that they affect many different parts of the body. Amyloidosis may also be “local” or “localised” which means that just a single organ or part of the body is affected. Local amyloidosis is usually of AL type and is a very different disease to systemic amyloidosis. Local amyloidosis may require no treatment or may be completely curable. Although there is no cure for systemic amyloidosis at present there are several treatments which can be extremely helpful and prolong life for many years. If you have been diagnosed with amyloidosis, or if a family member or friend has the condition, we hope that you will find all the information you need here. The website is here to help you no matter what your stage of the disease. New treatments are being researched and introduced more actively than ever before and are increasingly effective. There are good reasons for optimism and it is important to remember that you are not alone.
The National Amyloidosis Centre gratefully acknowledges the financial support of the following companies for its Amyloidosis Awareness programme:
IONIS Pharmaceuticals, Carlsbad, California, US
Alnylam Pharmaceuticals, Cambridge, Massachusetts, US
General administration, web design and medical communications provided by:
Dr Miriam Vered, Vered Consulting