Amyloidosis Patient Information Site
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    • Introduction to Amyloidosis
    • Nomenclature – what’s in a name?
    • About the National Amyloidosis Centre
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    • Videos of Professor Sir Mark Pepys
  • About Amyloidosis
    • AL Amyloidosis
      • Understanding AL Amyloidosis
      • Symptoms and Signs of AL Amyloidosis
      • Investigations for AL Amyloidosis
      • Treatment of AL Amyloidosis
      • Troubleshooting for patients with AL Amyloidosis
    • ATTR Amyloidosis
    • AA Amyloidosis
      • Introduction to AA Amyloidosis
      • Diagnosis of AA amyloidosis
      • Treatment of AA Amyloidosis
    • Hereditary Amyloidosis
    • Cardiac Amyloidosis
      • About Cardiac Amyloidosis
      • Diagnosis of Cardiac Amyloidosis
      • Treatment of Cardiac Amyloidosis
    • Other Types of Amyloidosis
      • ALECT2 amyloidosis
      • AB2M Amyloidosis
      • Localised Amyloidosis
    • Diagnosis of Amyloidosis
      • Introduction to diagnosis of Amyloidosis
      • Tissue biopsy
      • Genetic testing
      • SAP scintigraphy (SAP scan)
      • Diagnosis of Cardiac Amyloidosis
    • Amyloid associated diseases
  • Fever Syndromes
    • The Periodic Fever Service at the National Amyloidosis Centre
    • The inherited periodic fever syndromes – general information
    • The inherited fever syndromes – information on each syndrome
      • Familial Mediterranean Fever – FMF
      • Colchicine in pregnancy
      • TNF receptor associated periodic syndrome (TRAPS)
      • Mevalonate Kinase Deficiency (MKD), also known as Hyperimmunoglobulin D syndrome and periodic fever syndrome (HIDS)
      • Cryopyrin-Associated Periodic Syndrome (CAPS)
      • NALP12 associated periodic fever syndrome
      • Deficiency of the IL-1 receptor antagonist (DIRA)
      • Pyogenic sterile arthritis, pyoderma gangrenosum and acne (PAPA) syndrome
      • Blau Syndrome
      • Majeed Syndrome
      • GPP/DITRA
      • JMP/CANDLE syndrome
      • Auto-inflammatory diseases of unknown cause
    • The CAPS National Treatment Service
  • Trials
    • Amyloidosis Trials
    • AL Amyloidosis trials
    • ATTR Amyloidosis trials
    • AA Amyloidosis trial
    • Phase I trial of CPHPC + anti-SAP antibodies
  • Contact

About Amyloidosis

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  • AL Amyloidosis
  • ATTR Amyloidosis
  • AA Amyloidosis
  • Hereditary Amyloidosis
  • Cardiac Amyloidosis
  • Other Types of Amyloidosis
  • Diagnosis of Amyloidosis
  • Amyloid associated diseases
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    AL Amyloidosis
  • About Amyloidosis

    • AL Amyloidosis
    • ATTR Amyloidosis
    • AA Amyloidosis
    • Hereditary Amyloidosis
    • Cardiac Amyloidosis
    • Other Types of Amyloidosis
    • Diagnosis of Amyloidosis
    • Amyloid associated diseases
  • FAQs

    Read our FAQs – for answers to the most frequently asked questions about amyloidosis.
  • Patient Forum

    Visit our online forum – a place where patients with amyloidosis, family, friends and carers from all over the UK can connect, communicate and help each other.

  • NAC Videos

    Videos of National Amyloidosis Centre (NAC) staff explaining common tests carried out at the NAC.

  • Local Support Groups

    Some patients with amyloidosis are interested in organising local support group meetings. Please be in touch if you are interested in joining.

  • Patient Information leaflets

    These are available as downloadable PDFs on the UCL website.
Working with patients, families and the public to improve outcomes in amyloidosis
The information on this website is not a substitute for professional medical care. Patients should always consult a doctor regarding concerns about their health. For enquiries about your healthcare please ask your physicians to contact the physicians at the NAC.