This is a very rare autosomal dominant disease which was first described in 2008. It starts shortly after birth and somewhat resembles CAPS, with at least some features of cold induction, fever, limb aches, ‘nettle’ rash and deafness. As in all the inherited fever syndromes there are raised levels of inflammatory markers.
Information about COVID-19 (corona) for patients with amyloidosis is available on the National Amyloidosis Centre website – see here.
Read our FAQs – for answers to the most frequently asked questions about amyloidosis.
Visit our online forum – a place where patients with amyloidosis, family, friends and carers from all over the UK can connect, communicate and help each other.
Videos of National Amyloidosis Centre (NAC) staff explaining common tests carried out at the NAC.
Local Support Groups
Patient Information leafletsThese are available as downloadable PDFs on the UCL website.