On 25 January 2019, the inaugural ATTR Patient and Family Info Day was held at the Royal Free Hospital. The day was well attended: The Atrium conference venue at the Royal Free was filled to capacity by 130 attendees – patients and their relatives and friends. The day was organised by the UK ATTR Amyloidosis Patients’ Association (UKATPA). The morning involved some formal talks – speakers included Profs Hawkins and Gillmore from the NAC and Prof Reilly from the National Hospital for Neurology and Neurosurgery in London. Break-out sessions in the afternoon focussed on particular relevant topics and enabled discussion and sharing of information in smaller groups. The day was managed by NAC staff volunteers. Here are some videos from the day:
Information about COVID-19 (corona) for patients with amyloidosis is available on the National Amyloidosis Centre website – see here.
Read our FAQs – for answers to the most frequently asked questions about amyloidosis.
Visit our online forum – a place where patients with amyloidosis, family, friends and carers from all over the UK can connect, communicate and help each other.
Videos of National Amyloidosis Centre (NAC) staff explaining common tests carried out at the NAC.
Local Support Groups
Patient Information leafletsThese are available as downloadable PDFs on the UCL website.