ATTR Amyloidosis Infoday January 2019

On 25 January 2019, the inaugural ATTR Patient and Family Info Day was held at the Royal Free Hospital. The day was well attended: The Atrium conference venue at the Royal Free was filled to capacity by 130 attendees – patients and their relatives and friends. The day was organised by the UK ATTR Amyloidosis Patients’ Association (UKATPA). The morning involved some formal talks – speakers included Profs Hawkins and Gillmore from the NAC and Prof Reilly from the National Hospital for Neurology and Neurosurgery in London. Break-out sessions in the afternoon focussed on particular relevant topics and enabled discussion and sharing of information in smaller groups. The day was managed by NAC staff volunteers. Here are some videos from the day:

A promotional / montage video of the day

An interview with David and Sue Gregory

Professor Hawkins’ presentation from 25 Jan

Professor Gillmore’s presentation from 25 Jan

Dr Lane’s presentation from 25 Jan

Carlos Heras-Palou presentation from 25 Jan

Local press article about the infoday